E-drug: orphan cancers and drug development
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dear E-druggers,
I am trying to find a definition for what is termed "orphan" cancer.
Having checked with ACS and NIH, and NORD, the only information I find is
that any disease that affects less than 200,000 people is considered
orphan. They do not and have not been able to clarify that, whether it is
overall stats or yearly stats. If that were the case, most cancers
(including breast cancer which kills 44,190 per year) would be considered
orphan, and that does not sound right to me.
Can you give me information on this classification. Also, I need
information if you can help, as to how the determination is made which
diseases, especially cancer, get new drug developed for their treatment.
Who determines which cancers will be researched and which will not be?
For how long might funding be continued for particular cancers?
How might I find out how much funding is given to the various cancers? We
are holding a charitable event for "orphan" cancers which we feel need more
funding. We have to be able to give information which cancers fall under
that classification. Thanks for any information you might be able to
provide.
Sincerely,
Nadia Kelly
e-mail: callkelly@aol.com
1960 Elbow Lane
Allentown, Pa 18103
USA
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