E-DRUG: Nominations for a Patient Representative on neglected diseases
----------------------------------------------------------------------
[Dear E-druggers, let us not neglect the neglected diseases, and get some serious nominations for this post of patient representative at DNDI - the Drugs for Neglected Diseases Initiative. See www.dndi.org
WB]
Dear Friends,
A big thank you to those who have already responded to DNDi's call for
nominations for a Patient Representative to join DNDi's Board of Directors.
We sent out the call to our entire network and have received only a handful
of responses so far. The last date for submission, 15 February, is fast
approaching, and it would be useful to have a few more nominations to choose
from.
If you know someone who fits the profile below, please send your nomination
to me at jbanerji@dndi.org by 15 February 2005.
Your help in this matter is much appreciated.
Jaya Banerji
Communications Manager
Drugs for Neglected Diseases Initiative
1, Place St.Gervais
1201 Geneva
Switzerland
Tel: +41 22 906 9230
Tel (Direct): +41 22 906 9234
Fax: +41 22 906 9231
Email: <mailto:jbanerji@dndi.org> jbanerji@dndi.org
www.dndi.org
---
The Drugs for Neglected Diseases Initiative is inviting nominations for a
Patient Representative to join DNDi's Board of Directors.
As the fruit of DNDi's drug development is obviously intended for the people
suffering from neglected diseases such as leishmaniasis and sleeping
sickness, we wish to involve patients in this R&D process via a Patient
Representative to the Board of Directors. More often than not, the needs of
patients are lost in the hunt for new drugs to treat their diseases. DNDi
believes that if new drugs are to be relevant and effective the patient's
voice should be heard loud and clear and their profile and needs be central
to the R&D of new drugs for their diseases.
The Patient Representative will have three main tasks:
* Help the board to better understand social/ economic/ social
barriers to effective healthcare, as well as patients' needs and their life
conditions
* Link up with health organizations, take their concerns to Board, and
encourage patient-group participation in DNDi projects
* Promote DNDi and its projects to the general public, governments,
scientific community, NGOs and media
As DNDi's Patient Representative he or she must be a Protector of Patients'
Rights, DNDi Advocate, Gatherer and Disseminator of Patient Information, and
Networker. As a member of the DNDi Board, he or she will be expected to
discuss and decide on DNDi-related issues; and will represent patients'
interests independently of his or her affiliations.
The ideal profile is that of a community health worker from a
neglected-disease-endemic region who has access to a large network of health
organizations. This is not a salaried position but will be compensated by a
per diem and reimbursements where appropriate.
Nominees will be contacted in February-March 2005 and the finalist's
credentials presented to the Board in April-May 2005.