[e-drug] UK moves closer to issuing ‘Crown use’ license to access generic cystic fibrosis drugs

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E-DRUG: UK moves closer to issuing ‘Crown use’ license to access generic cystic fibrosis drugs
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Dear e-drug readers,

Following the decision by a group of parents of children with cystic fibrosis to found a buyers club to provide access to lower priced generic ivacaftor-lumacaftor (Vertex brand name Orkambi) the UK government yesterday announced that it will look seriously into the option to make Crown use. See for details our lates blog:

https://medicineslawandpolicy.org/2019/06/cystic-fibrosis-buyers-club-shows-the-uk-government-the-way/

Here is an excerpt of the parliamentary meeting where Under Secretary of State for Public Health and Primary care, Seema Kennedy, told parliament yesterday, that in light of ongoing failure of Vertex to offer a fair price the government has a "moral obligation" to explore all options including Crown use and a large scale clinical trial to get access to a generic.
https://parliamentlive.tv/event/index/733e2c79-696a-4261-abc1-73137a2b25a3?in=18:52:20&out=18:53:09

Kind regards,

Ellen 't Hoen

Ellen 't Hoen LLM, PhD | Medicines Law & Policy
www.medicineslawandpolicy.org
E-mail: ellenthoen@medicineslawandpolicy.net
Twitter: @ellenthoen